And blah.

Jan. 3rd, 2014 11:20 pm
beckerbuns: (icon_beckyrainbow)
Misty was up throwing up throughout the night last night but was pretty much better by bedtime, thank goodness.  She bounced back way faster than I did.  And as for me I've got some unpleasant gas and a little dizziness but am basically better.  Yay.

Ricky had his DEXA scan today.  He has this once a year because of his CF causing mineral deficiencies (which hopefully he makes up for by drinking close to a gallon of milk a day) and because he takes Heparin, Prednisone, and anti-convulsants on a regular basis.  After that we had Panda Express.  While we were doing all of this Misty was recovering at my mom's.

That's basically it for today.  The weekend is... Freeeeeee so far.  I can't remember the last time I've been able to say that.  Sadly, the most exciting thing I can think of to do is sleep.  *sigh*

ETA:videos of Ricky's DEXA scans present (first) and past (second -- 2008) )

Ugh

Jan. 2nd, 2014 11:54 pm
beckerbuns: (icon_mistybeach2009)

Misty has the stomach crud now. With me it was more um. Diarrhea. She has been throwing up. Five times tonight already. Poor poppet. I hate seeing her so miserable. I hope this doesn't get as bad with her as it did with me. I didn't pee for 24 hours.

Tomorrow Ricky has his DXA scan (checks for bone density). Not much else on the agenda. His cough is getting worse. I hope it doesn't require any extra medical intervention.

beckerbuns: (icon_babybuns)
Misty01

http://beckerbuns.livejournal.com/2006/07/20/

Yesterday we had Misty's birthday party at Bouncyland. She's FIVE. FIVE!!! I can't believe it.

5 years... )

I'm alive!

Jun. 23rd, 2011 10:40 pm
beckerbuns: (icon_getintomyownpants)
Thanks for the nudges. I really am alive. As some of you know, we did score a great house and moved in, in the middle of May. It's a charming little 98 year old farmhouse in the Rosegarden area of San Jose. It's actually not TOO little... Four bedrooms and two baths, with a 10,500 sq ft lot. It's HUGE. And I finally have my own garden. Like, an in-the-ground garden, not in containers.

Our garden 2011


There are lots more pictures of the house here. It's an old house and as such we have been dealing with lots of old house issues... Windows that won't open or are otherwise defective, a garage that needs work (and therefore we have EVERYTHING in the house... it's still quite cluttered and maddening, especially to Liz), no air conditioning (I'm the fan queen), funny construction (the house seems to slant downhill in places, for instance). But overall... We love it. We have christened it "The Farmhouse in the Garden" (or FiG). :)

(And if any of you would like my new address, please let me know.)

Things with the kids are going okay. We've had to shuffle around school placements. We are now in San Jose Unified School District, the biggest one in the area but not without its faults and frustrations. At this point it looks like Andrew will be allowed to keep his county program placement. Ricky will be going to the same high school as Liz's son Kevin, which is down in south San Jose by their old house. There's a life skills program there that's a lot like the one he was going to transition into in the old district. Both boys are going to be in summer school. Well, Ricky is right now; Andrew starts on July 5 (my birthday). Andrew's county program is the same one Ricky was in for 2-1/2 years so ultimately Andrew will graduate from the same middle school Ricky did. :) Misty is going to be starting kindergarten in the fall (!) and turns 5 next month. She will be going to the neighborhood school. And she is EXCITED.

In June I have had plenty of hours but that will be changing because the library's hours are changing drastically starting next week and all branches will be on a four day schedule. I am not sure how this will ultimately affect me; we shall see.

Oh, the new house is a block and a half from the Y. So we have renewed our membership and have been walking over to swim a lot lately. In fact tomorrow I am going back there with the kids (mine and Kevin).

And now... The knee saga. Sigh. I'm on state funded insurance. I injured my knee in December. My doctor refused to do anything until March, saying it could heal.  Then I had a negative x-ray and she referred me for an MRI which I finally got 3 months later (because the wait was that long). Then she waited 3 more weeks even to give me my results and I had to hound staff and dial random extensions to get an appt. Turns out I have a torn medial meniscus, torn MCL, and patellofemeral syndrome, which has caused knee instability and made me fall down the stairs in the new house twice, injuring my other knee similarly. It has now been 6 months since my original injury and I am looking at a wait of at least 3 months to see a surgeon. And then? Who knows.

So that's it for now... I will again promise to be a more regular correspondent. I spent a lot of today catching up on other people's LJs. I hope you haven't all given up on me!
beckerbuns: (icon_mistysad)
Misty's having a hard time staying in her new bed. She's in Ricky's former bed since the boys have been moved in together. Her new mattress came today. I got her back from her dad today, and she was here for the mattress delivery. She helped make the bed (thank goodness... I didn't want to climb up there).

Misty making her new bed.

(Those are Lightning McQueen sheets. That's what she has on her bunkbed at Daddy's house and I thought I'd get them for her to have here -- she approved!)

She tucked her babies into the cradle I slept in when I was a baby, which my mom gave us today. Everything seemed peachy. At bedtime, we read a book as usual, and then she got into bed. She came out one time for another hug and then... She went to sleep! She slept for three hours!

And then she woke up. She had the mother of all tantrums when I told her she needed to sleep in her big girl bed. She insisted she wanted to go into her old bed. That's the crib-converted-into-a-daybed in my room. It's still there but I stripped all of the bedding off of it. When she was done having the tantrum, I said I would let her use my nightlight til we could get her her own, and that I'd sit in there for a while so she could go to sleep (this is a trick I learned on Supernanny). I got a chair and my new nook color and camped out for a while. The first time I tried to leave, she came out after a few minutes. When we went back in, I put on Andrew's clock radio on a softly-played alternative station and sat in there again. I guess I left too soon because she came out again. She was concerned about her old bed. I told her we might sell it to a family with a baby. She didn't want me to sell it. As I walked her back into her room I said maybe we wouldn't sell it so soon. I sat and read the nook for a little bit longer, until I thought I heard her snoring, and I left the room.

And now she's asleep.

Whew!!!!!

I'm sure this is just the first of many battles, but it's a start.
beckerbuns: (Default)
I really owe everyone an update. I am also going to try my hand at publishing public journal entries. I am not going to do it all the time, but I like for people who are not on LJ to be able to read what is going on with me in more than 200 characters. :)

By way of an explanation... I have become involved in a program through an autism research organization, where I write journal entries based on prompts they provide. It is to see if journaling can help moms of kids on the spectrum with dealing with all of that stuff. My LJ is not part of that, but it occurred to me that if I started journaling more (again... I LJ'd every day for several years and fell off the wagon after I got immersed in Facebook), I might be better able to deal with my daily stressors. We'll see.

So, what's been going on? )

Guess that is it for now. Hope everyone is doing well and you'll be seeing more posts from me! :)
beckerbuns: (icon_volunteering)
Behold, a new article: Parenting the Special Needs Child: Books for the Journey (well, it is on Examiner too).

And a new funny Misty video: Misty is a pudding mess

Please, if you would, click the links and recommend? Thanks!!
beckerbuns: (icon_todayisthetomorrow)
They were looking for "America's Funniest Videos" so here I have one you might like... Misty helping Dave play XBox 360 when she was very little. :)

Here it is. Please click and recommend and enjoy! (She is so cute!)
beckerbuns: (icon_familyiseverything)
Today is the 9th anniversary of my dad's death. It is also Don't Fry Day, which always happens on the Friday before Memorial Day weekend.

My dad died of metastatic melanoma. It started in 1991 with one of many cancerous spots he had removed by his dermatologist. This was the first malignant melanoma spot. It was near his temple.

It cropped up again in 1999 in his vertebra, although it took a while to figure out what was wrong. The melanoma at this point was already stage IV and progressed quickly to his liver, one kidney, and brain. He underwent spinal fusion and numerous chemotherapy and radiation treatments, largely for comfort because there would be no cure.

He also had non-small cell lung cancer (unusual to have two types of cancer at the same time) but ultimately died from the melanoma invading his digestive tract. We knew he didn't have long, but it still came WAY too quickly. We didn't feel like we had time to say goodbye. His virtual memorial is here. He was a father, son, uncle, and my mom's soulmate.

Yes, today (for another 20 minutes or so, anyway) is Don't Fry Day, but it is important EVERY day of the year to remember to use sunscreen.

Don't look like this:

Andrew's sunburn (back)
Andrew, age 10


My dad adored his grandsons. I wish he had lived long enough to meet Misty. He would adore her as well.

Andrew with his Pop 11-21-98
My dad with Andrew (8 months old) in 1997


Ricky and Pop Dec 1996
My dad with Ricky (12 months old) in 1996

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